A Stable, Changeless State

Prior to my wonderful boobie experience yesterday, the Centrelink (Social Security department) appeals lady phoned me for more information. We discussed why ‘they’ decided that my condition was not fully stabilised.

Because Mommy and I begged my third rheumatologist (her almost in tears, me with tears dripping down my face) to refer me to rehab (which is costing me a small fortune) and to experiment a little with my medication (I was started on Lyrica back in November and nobody wanted to try anything different before giving up on me and any improvement), my condition is not considered to be fully stabilised.

Supposedly, it doesn’t help that the doctor’s report (from the first rheumatologist) states that he believes that there will be significant improvement within 3 to 12 months (despite telling Mommy and I that there was nothing else he could do for me – how was this improvement supposed to come about, then?)

Then there was the second rheumatologist who decided that all I needed to do was tidy up my ‘sleep hygiene.’

So, I’m up to my third rheumatologist who also thinks he cannot do anything for me, so Mommy and I decided we had to do it ourselves but we still need him (or my GP) for referrals and their prescription pads.

But it appears that for Centrelink to decide that my condition is fully stabilised, I need to give up. I need to remain on my current medication. I need to continue to feel my current pain. I need to lose my train of thought on a regular basis. I need to feel exhausted every day. I need to recoil from daylight. I need to shy away from bright lights at night (and during the day). I need to endure my restless nights. (You get the idea.)

But this is what it seems Centrelink requires from me. The lady told me it wasn’t quite over yet – but don’t get my hopes up.

Lucky me – after that fabulous conversation, I got to have a needle in my boobie (actually three)!

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10 Comments

  1. I would love to send you my tale of woe after reading this blog – it’s so much like yours (but with a different twist). Not only don’t they ‘get it’, they seriously just don’t get it, or anything at all about this condition. Of course, they are just doing their job. FFS someone give them some training so they can do it properly, please!!

  2. Yep, that’s Centrelink all over.

  3. Danielle Huertas

    Is Centerrelink like USA’s SSD? So much I have to look forward too!! I recently applied here. I am soooo sorry about your day:( I wish I could send you a million $ and hugs and drugs ,,,, or a body transplant lol!! xoxoxox

  4. Danielle Huertas

    PS you brought back love with the posting of the kylie video…I grew up with that one back in Ireland when I was little before I moved here! She is not so popular over here. Thanks.

  5. Danielle Huertas

    I have started telling my doctors nurse, when she asks ” what are you here for hun?” “my transplant” She looks at me confused for a minute and I explain I want the body of Jennifer Lopez hahaha She remembers “right sweetie you are in pain, what are we gonna do, hope you feel better soon”. Shes sweet and really means it.

  6. Hang in there how can this condition ever be stabilized. That seems so weird to me what do they want to stabilize? And if you are not stabilized what then. Just sounds nuts! Sorry different country. We fight our battles here too but they pratically. Make you get on your hands and knees and beg! Yo get your benefits you have worked your whole for and all the taxes we’ve paid then some drug dealer gets it like that and we have to beg for our money we earned that they are giving to them!

  7. redheadboxermomma

    I won my disability case on the first try – got an attorney,got my ducks in a row, kept a daily log, etc. I think it helped that I have a hat trick of problems. It was a load off my mind. Took 6 months, but that’s fast. In the USA, you can appeal and request a hearing. Sometimes it takes people years!

    Keep fighting. If they could only walk in your shoes for ONE day, they wouldn’t say one word, ask one question, etc.

  8. Pingback: It’s a Blooming Miracle! « fibromodem

  9. So sorry your doctor wasn’t helpful! Thanks for writing this blog. I always read it and appreciate your words!

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