A New (better?) Philosophy

One of the first things I did when diagnosed with a ‘probably fibromyalgia’ was get on the internet – leading me to blogs, medical pages and associations.  I immediately joined up to Arthritis Victoria, which has a library and loads of books about fibromyalgia.

So many of these sites remind us all to PACE YOURSELF. So that’s what I started doing. I organised a revised (with less hours) work schedule: I would go to work Monday afternoon for 3 hours, then rest Tuesday. Go to work Wednesday afternoon, then rest Thursday. Go to work Friday afternoon, and then after my busy week, need to rest all weekend. I still had pains, headaches and fog. I was still unable to go to work if it was a bad day. This ‘pacing’ wasn’t making me feel much better (it wasn’t making me feel much worse, though, either)

BUT this is not how I want to spend the rest of my life! This is an existence. This is mediocre! This is no fun (remember that word from your old lives?)!

SO…I’ve decided upon a new way of life. I’ve decided that I’m taking advantage of my good moments. I am NOT pacing myself. If I feel good enough to do a particular activity, then I’m going to do it. Yes, I will probably feel like shit later, and have to lie in the dark loaded on painkillers – But I am REFUSING to miss out on life when I do feel ok.

I do not want to sit on my couch for the rest of my life – so yes! I’m going to walk too far on a gorgeous day, at the beach, with a friend and her puppy!

Now I have to finish because my beautiful nephew Z is coming over – we will go for a walk to the park, we will draw pictures, we will play ball, he will suck all the energy out me – BUT it will be worth every minute of it!

Grab the good moments with everything that you have!

A New (better?) Philosophy

One of the first things I did when diagnosed with a ‘probably fibromyalgia’ was get on the internet – leading me to blogs, medical pages and associations.  I immediately joined up to Arthritis Victoria, which has a library and loads of books about fibromyalgia.

So many of these sites remind us all to PACE YOURSELF. So that’s what I started doing. I organised a revised (with less hours) work schedule: I would go to work Monday afternoon for 3 hours, then rest Tuesday. Go to work Wednesday afternoon, then rest Thursday. Go to work Friday afternoon, and then after my busy week, need to rest all weekend. I still had pains, headaches and fog. I was still unable to go to work if it was a bad day. This ‘pacing’ wasn’t making me feel much better (it wasn’t making me feel much worse, though, either)

BUT this is not how I want to spend the rest of my life! This is an existence. This is mediocre! This is no fun (remember that word from your old lives?)!

SO…I’ve decided upon a new way of life. I’ve decided that I’m taking advantage of my good moments. I am NOT pacing myself. If I feel good enough to do a particular activity, then I’m going to do it. Yes, I will probably feel like shit later, and have to lie in the dark loaded on painkillers – But I am REFUSING to miss out on life when I do feel ok.

I do not want to sit on my couch for the rest of my life – so yes! I’m going to walk too far on a gorgeous day, at the beach, with a friend and her puppy!

Now I have to finish because my beautiful nephew Z is coming over – we will go for a walk to the park, we will draw pictures, we will play ball, he will suck all the energy out me – BUT it will be worth every minute of it!

Grab the good moments with everything that you have!

The First One

So, I spent 4 hours writing and editing a post to appear here. Then I found the ABOUT page (now called Background Check) and decided to move it all there (another 2 hours). This blogging thing is not as easy as it looks!

And, now I’m too tired to write anything worth reading as my first instalment. But I can’t leave it blank, can I?

So, I’ll just quickly introduce you to the people who will probably feature in my future blogs:

The edited family tree

Obviously, I’m VERY important (in the middle) but the highlighted names will probably feature in any of my upcoming blogs. Good luck getting to know me, my family and friends.

A cure? No-one has shared a REAL cure with me!

The First One

So, I spent 4 hours writing and editing a post to appear here. Then I found the ABOUT page (now called Background Check) and decided to move it all there (another 2 hours). This blogging thing is not as easy as it looks!

And, now I’m too tired to write anything worth reading as my first instalment. But I can’t leave it blank, can I?

So, I’ll just quickly introduce you to the people who will probably feature in my future blogs:

The edited family tree

Obviously, I’m VERY important (in the middle) but the highlighted names will probably feature in any of my upcoming blogs. Good luck getting to know me, my family and friends.