Beating Fibromyalgia?

I was directed to a link to a documentary by producers Living Whole Body Health and Dr. Tim Weeks called Beating Fibromyalgia

This documentary focuses on the life of Prasad Moss, a 37 years old man who has suffered from Fibromyalgia for over 20 years causing him great pain and disabilities. This 61 minutes long documentary shows Dr. Tim Weeks and Prasad Moss take up a 21-day intensive natural healing protocol to help Prasad find relief from his pain and fatigue, and after the 21 days Prasad becomes pain-free.

This film is available on Amazon Prime Video and can be viewed for free by Amazon Prime Members. It can also be rented for as low as $0.99 for those who don’t have an Amazon Prime membership. (This is NOT me advertising or endorsing this film as) it seems that it cannot be viewed in my area (Melbourne, Australia) so I can’t review it.

I’d love to hear some of your (objective) opinions below.

 

Utopian Worldwide Wellness

You may have noticed a new widget on my site – Priceless Vitality.

Ian-PericarrowA friend of mine, Ian, has started a non-profit organisation that is almost Utopian. The concept behind it all: supporting and sharing wellness worldwide by providing access to quality health focused information, products and services for everyone.

Priceless Vitality is anywhere with an internet connection. Anyone in the world is welcome to use Priceless Vitality for free, and there is a growing range of internet delivered “worldwide” listings. (Because this initiative is just starting out, the coverage is currently limited by the level of community awareness.) You can create listings on the site for offers as well as requests for something you need. If there’s anything that you could really use, you can create a request listing on our site asking for it.

Offers could range from organic food to private health cover, and can be open to everyone or targeted to specific categories of people. These categories are based on things like age, income and illness type. Providers share what they can and those who receive are free to pay the suggested price, pay more or negotiate to pay what they can. Payment could take the form of a smile, a trade, a payment plan, money, an alternate economy or paying it forward. The price is open to negotiation between the recipient and the provider.

As well as connecting people through this free service, Priceless Vitality intends to provide wellness information and raise funds to subsidise providers, pay for therapist training and support projects that improve people’s quality of life.

Mission:

WorldPriceless Vitality is committed to supporting and sharing wellness worldwide by providing access to quality health focused information, products and services for everyone. We believe that health and happiness can become a new “normal”.

Our World Wide Wellness network helps people gain access to health care and support.

Vision:

We facilitate compassionate action providing a platform to make a healthy life affordable across the globe. We make access to health focused goods and services available to everyone and support projects that nurture a sharing oriented community spirit.

Priceless Vitality is proof that care is sustainable and shows that people are happy to give some wealth in exchange for a stranger’s health – doing all we can to support a happy and healthy planet for generations to come.

Values:

We bring together the Individual, the Community, the Medical field and the Alternate health field in an ecosystem of honesty, integrity and a shared goal of community health.

At the heart of everything we do, our mission, vision and services are all underpinned by these core values:

  • Compassion: With heartfelt respect and empathy we do our best to improve the quality of life for everyone who wants our help. Working with respectful understanding and deep integrity towards the shared Wellness of everyone on the planet.
  • Innovation: We are open-minded – constantly listening, adapting and exploring new ways to deliver a genuine positive impact on people’s lives.
  • Health: In sickness and in health we do all we can to make affordable health measures available to everyone. This includes mental, physical and environmental health. Bringing treatment to those who are suffering and proactive health options to others.
  • Passion: We are driven and committed to make health and happiness the norm for generations to come. Our dedication to creating sustainable smiles is electric and contagious!
  • Collaboration: We are for something and against nothing. Working together as one global family. Encouraging individuals and organisations to combine their efforts and help each other towards shared goals. Creating products and services that produce something far greater than the sum of their parts.

Isn’t it an idealistic and wonderful model? (No, I don’t want to hear the Debbie-Downers – there are plenty of reasons why this won’t work BUT, with honesty, integrity and a shared goal; it absolutely CAN work!)

I’m asking you to share the site with your health providers, your friends…oh, just everyone, please.

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Drive Me Crazy


I hate driving! (Mind you, I also hate being a passenger with some people, too…but that’s another story!) Even in my cute little car. carDriving can be a major stressor. And we are all very aware that stress is a common trigger of flare ups. As well as being stressful, driving requires you to sit and move in ways that can make your bits hurt more.

Trains, buses and taxis may be options, but public transportation comes with its own stresses and is not always available or affordable. Many people with fibromyalgia cannot walk or bike very far without pain, and getting a ride is not always easy. As a result of all this, you may not be able to avoid driving, especially if you work. But, perhaps, there are a few things you can do to better cope with stressful driving situations.

The Risks of Driving with Fibromyalgia

  • Increased pain – Sitting in the same position for prolonged periods of time can cause pain and discomfort. It doesn’t allow for proper blood circulation, and sitting in one spot can pinch nerves in the legs and back, causing more pain.
  • Overstimulation – Any type of overstimulation that comes about from speeding cars, the noise, heavy traffic, and other visual and auditory sensory input can be added stress for us.
  • Fibro fog – Fibro fog, or cognitive troubles associated with fibromyalgia, can make it difficult for you to pay attention to the road. This can make being behind the wheel dangerous not only for you, but other drivers.

Things You Can Do to Help

If you need to drive, you can make some adjustments and improve your experience and make for a safer driving experience.

  • Make sure you get a good night’s sleep – It is imperative to sleep well (or as well as can be expected) the night before you are driving, so that you are not exhausted the next day. This will help prevent grogginess, which can cause a safety issue for you and others on the road. If you find you are extremely fatigued, see if you can get another person to drive for you. Check with your doctor about getting medication to help you sleep or try melatonin for a better night’s rest.
  • Plan your route – Figure out where you’re going and plan your route ahead of time. You will want to find the route that is least likely to have traffic or obstacles like construction. If you have GPS, use it, as it removes some of the stress of having to remember where you’re going. Additionally, there are apps for your phone that can tell you how traffic looks on the main highways and interstates so you can avoid traffic jams.
  • Make sure you’re comfortable – Make sure your seat is as comfortable as possible and that your posture is correct while driving – aim to be sitting up straight the same way you would at a desk. You may have to adjust your seat and mirrors to achieve this. If you’re still uncomfortable after making adjustments, try out a different headrest, or use a cushion or back support.
  • Take breaks – If you are driving for an extended period of time, take regular breaks to get out and stretch, and to rest your eyes and brain for a little while.
  • Consider alternatives – If you’re finding that driving causes you too much pain, or you become too disoriented while behind the wheel, look for alternative transport options. You may want to organize a carpool to work, work out how often you can afford to taxi, or, if you don’t have too far to go, consider a mobility scooter.

If you’re not feeling up to driving, DON’T. Your safety, and that of everyone else on the road, is far more important than arriving at your destination. REALLY!

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Making Awareness Day Personal

For 2012, 2013 and 2014, I went BIG for Fibromyalgia Awareness Day. This year, I’ll admit to dropping the ball. I’m tired, physically and emotionally. I’m tired of fighting the world. So this year, I’ve been fighting for me!

I’m sorry if you feel like I have let you down and not been there to support you.

I made this video (quite a while ago) because I am lucky enough to have a Mommy who loves me and tries to understand. (I’m not so sure about the rest of the family.) But, because of this, it upset me so much when I hear from so many of you that you don’t have the support and understanding you need. Friends and family are supposed to be there for whenever you need them. Most days, I get a message or comment from some-one who is lacking support from their nearest and dearest. Sometimes, it’s because you hide your pain, or you haven’t asked for help. Sometimes it’s because they just don’t get it. 

I’m hoping that presenting these people with this video might help.

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Did the Earth Move for You, Too?

According to recent study findings by Anthony S. Kaleth, PhD, associate professor at the School of Physical Education and Tourism Management, Indiana University-Purdue University Indianapolis, whole-body vibration exercise effectively reduced the severity of pain in patients with fibromyalgia.

146. best exerciseBUT it is not entirely clear whether these improvements were the result of added vibration or just the effects of being more active.

24 women with FM were randomly assigned to either 8 weeks of twice-weekly, lower-body, progressive-resistance exercise with whole-body vibration or an attention control group. Whole-body vibration involved patients standing, sitting or laying on a vibrating platform to induce alternating muscle contraction and relaxation.

Patients were assessed at baseline and at 8-week follow-up for fibromyalgia-related physical function, pain severity and muscle strength.

The researchers found a significant improvement in pain severity among patients in the whole-body vibration group compared with controls, but the magnitude of muscular strength improvement was not different between groups.

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FLARE

christy & the professorsChristy & The Professors, originally called Christy (Christy Foster) & The Professor (Nathan Foster), started in early 2013 as a fun project for a husband and wife team. Shortly after launching the project, the duo wanted to build a full band and added a few friends to play drums, percussion, and do backing vocals in the group. In August of 2013 local guitarist Shane Pitmon heard the band live and a week later asked to join the lineup. Over the next couple months the band made a few more lineup changes and in November 2013 added drummer Ryan Hudson. After adding Ryan, the current lineup was in place and Christy & The Professors began work on their debut EP.

christyChristy, like us, has struggled with fibromyalgia. Being in a rock band, she wrote a ROCK song about how she was treated by the medical community and thought it might resonate with others who have had a similar experience.  The song is called FLARE!


WORDS:
And they say that they think that it’s all in my head
And I say that I feel I’d be better off dead
All the blood that they drew they could never be fed
Forget you

And they say that they know how I feel
And they say that they know what’s for real
You’re just a cog in a broken medicine wheel
Forget you

I-I am not your waste of time
Your pride is such a shameful crime
Your ignorance it blows my mind
Forget you

You think that you know me
But you’ll never know me
You are such a waste of time

You think that you know me
But you’ll never know me
I never gave you what’s mine
Forget you

I-I am not your waste of time
No no you are so blind
I-I am gonna blow your mind
Forget you

 

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A Fine Line Between Pleasure and Pain

New research indicates that a disruption of brain signals for pleasure and pain contributes to increased pain sensitivity, known as hyperalgesia, in FM patients.

Results published in Arthritis & Rheumatism, a journal of the American College of Rheumatology, suggest that this altered brain processing might contribute to widespread pain and lack of response to opioid therapy in such patients.

“In patients with fibromyalgia there is an alteration in the central nervous system pain processing and a poor response to topical pain treatments, trigger point injections and opioids,” said lead author Dr Marco Loggia from Massachusetts General Hospital and Harvard Medical School in Boston. “Our study examines the disruption of brain function involved in the individual experience of pain anticipation and pain relief.”

For this study, the research team enrolled 31 patients with fibromyalgia and 14 healthy controls. Functional magnetic resonance imaging (MRI) and cuff pressure pain stimuli on the leg were performed on all subjects. During the MRI, participants received visual cues alerting them of impending pain onset (pain anticipation) and pain offset (relief anticipation).

brain_3Results show that during pain anticipation and relief, FM patients displayed less robust response within brain regions involved in sensory, affective, cognitive and pain regulating processes. The ventral tegmental area (VTA)—a group of neurons in the centre of the brain involved in the processing of reward and punishment—displayed activation during pain anticipation and stimulation, but deactivation during anticipation of relief in healthy controls. In contrast, VTA responses during periods of pain, and anticipation of pain and relief, in FM patients were significantly reduced or inhibited.

Dr Loggia concludes, “Our findings suggest that fibromyalgia patients exhibit altered brain responses to punishing and rewarding events, such as expectancy of pain and relief of pain. These observations may contribute to explain the heightened sensitivity to pain, as well as the lack of effectiveness of pain medications such as opioids, observed in these patients. Future studies should further investigate the neurochemical basis underlying these dysfunctions.”

 

Fibromyalgia – it IS life threatening!

For those who have heard about, but didn’t get to see, Dr Oz’s show about Fibromyalgia… dr oz

It is a four part video. Here are the video links:

A Mish-Mash Update Post

You might remember back in January, I wrote Bigger is NOT Better. As part of a recent campaign in Australia, I pledged to lose 30 kilograms (about 66 pounds).

I am reminding Sherri Caudill Lewis, Lara from Live your dream life and sparkle, Kimberley Hatfield- Patty, Valerie Dunlop, Vicki, FibroLogic (all people who commented on the original posting), and all those who didn’t comment but decided they wanted to lose weight, that we are still in this together. How are you all going?

Anybody else trying to lose some weight to feel better?

I have lost 9 kilograms so far and I’m working really hard to try to exercise more and eat less (chocolate, cheese & ice-cream). The new season of BLThe Biggest Loser just started and I decided that it was the perfect time to do sit-ups and crunches each day. I figured that if I was going to lose all this weight, I didn’t want a ‘flappy’ tummy. I knew it was going to hurt; but I hurt everyday so, I thought, let’s make it worth it.

My Pain Specialist vetoed that idea! The more stomach muscle spasms I was having, the less I could do any aerobic exercise (ie: walking).

So, I have just returned from my warm water exercise class (a permitted activity), where I worked as hard as possible (and, I can tell already, was too much). Right now, my body feels all stretched out and fabulous BUT tomorrow I know that my muscles will be screaming!

brilliance-1stIn my shower, afterwards, I test drove a hair colour called Ultra Violet. I thought I may be able to get a great purple (I’m going Purple for the entire month of May!) in one process. I stopped at my hairdresser’s first to check that, if it didn’t give the desired result, we could bleach it out and try another purple. It’s still damp but it’s looking more red than purple – BUMMER!

***AM.02-11.LubesTip of the Day***The exciting news is that I found a new use for lube. I couldn’t find any Vaseline to put around the edges of my hair (to stop my skin going purple) so I tried lube (especially seeing as I’m not having any sex) and it works really well – ***Tip of the Day***

So, that’s all my latest news…have you got any plans for International Fibromyalgia Awareness Day?

TGIF…in some places

Because I forgot yesterday (when it was Friday in Australia): here is Six Word Friday
six word fridaysThe Six Word Friday prompt this week is HAND or HANDS – (Hand it over! Helping hands. Hand in hand. Hands down…on the other hand… Hand-me-down.)

The challenge with this kind of post? To keep each line I write to only SIX {6} WORDS!! (we don’t count the number of lines, syllables or letters…just the number of words!).

Examples have included:

  • Six word photo caption
  • A verse, each line composed of six words
  • A story, told six words at a time
  • A six word quote {or six words of a quote}
  • A wish {a musing, a lesson…anything at all!}

Now this one might be cheating (but I’m all about pushing boundaries!)

Cant-Keep-My-Hands-Off-You-Feat-Rivers-CuomoBy Simple Plan  ft. Rivers Cuomo.

You might want to turn your sound down slightly…