FCK – Fibromyalgia Community Knowledge Blog Directory

HeaderA directory of Blogs that help spread knowledge and awareness of Fibromyalgia: blogs where you can get first-hand information from others who are going through the same experiences as you.



A Life Well Red

Kristine (aka ‘alifewellredRed’) is a wife~mother~nana ~gardener~baker~writer~artist~abuser of doughnuts and keeper of chickens.   Journey with with down a holistic road of healing with food, creative explorations, and the pursuit of creating as peaceful an environment as possible while we do our time here on this spinning blue rock~

Akemi’s Heart, Mind and Soulakemi

Written by Darla, a teacher who is still adjusting to not being able to do things she used to with ease.  she writes about surviving her invisible illness…with Love, Laughter, Faith, Hope and a Bit of Wisdom…..

The Chronic Chronicles

Created by Jade, a 24 year old female, living with multiple chronic conditions: Ehlers-Danlos Syndrome, Fibrchronic Chroniclesomyalgia, Myofascial Pain, Postural Orthostatic Tachycardia Syndrome, Depression, Scoliosis, Autonomic Dysfunction, EDS-Related Intestinal Dysmotility, Asthma and Dyslexia.

Chronic Mom

Family doctor, ichronic momnternist, endocrinologist, another endocrinologist, rheumatologist, dentist then finally FM/CFS doctor…sound familiar? This is a day in the life of a mom living with Lyme disease and Fibromyalgia.

Chronicles of FibromyalgiaLeah Tyler

From her pain, Leah has found her purpose and shares her journey to inspire hope. Leah seeks not to be defined by what she has endured, but by what she has overcome.

Counting my Spoons

Julie sharejulie ryans her journey with Fibromyalgia and other invisible illnesses in hopes of both informing and inspiring other Spoonie’s (those who suffer from invisible illness). In addition to sharing medical info, inspiring thoughts, nutrition, and exercise info, Julie posts an interview with a different Fibromyalgia Warrior each week, helping us all know that we are not alone.

Dawn’s FibroBlogdawn

This is Dawn’s own experience with Fibromyalgia. It is her way to share and maybe help someone not feel so alone. Hopefully, Dawn’s ramblings of medications, depression, pain, and the like, will not be too boring!

Discovering Me: One Day at a Time

Jess, a Kiwi living in a little slDiscovering meice of NSW Australia rural country, is a newly diagnosed Fibromyalgia Fighter, feeling her way through and intending to write about it and all the ups and downs that come with the diagnosis. She is learning to love life one day at a time.

The Girl with the Five Lads

Vanessa started blogging aiming to help others, raise awareness and learn from fellow chronic illness sufferers in the process. Her blog covers the ordinary life as a family, focusing on how life drastically changed when she became chronically ill. Her aim is to share positivity and help others find happiness. She believes everyone has the ability to shine, and likes to help people find the right direction.’  

Faith & Fibromyalgia

Written by Dharshi, a 22 year old Christian in Australia, suffering (but fighting) with fDharshika Anendsinghibromyalgia: fighting to love God with her limited strength, fighting to find joy in the midst of her struggles; and fighting to hold on to the ability to dream about a future that’s better than the present.

Fibro Daily

A currentFibro Daily, up-to-date resource for fibromyalgia news and information;  dedicated to compiling the latest breaking stories from all the major online and topical publications, making it easy for you to find the most relevant news in one place. The editors and contributors at Fibro Daily are committed to sourcing the best quality information available to make your search for answers a little easier.

Fibro Daze

A blog writtSue Vickersen by (Sue Vickers) and for baby boomer women, especially those of us living with a chronic condition that causes pain and fatigue, like fibromyalgia. If you are a women over 50 and also suffer from chronic pain and fatigue…Sue wants to connect with you and talk about the daily challenges that come from getting older, breaking old habits and learning to make healthy choices.

Fibro Fitness

Having ffibro fitnessought her way back from being incapacitated to some semblance of “normal,” Kathy hopes that by sharing her struggles and triumphs, she can help someone regain their health . It has been a journey of a lot of trial and error .

FibroModem

cropped-header-5.jpgCreated by Simone, a 40-something Aussie, who has NOT learned to manage this condition so is trying to use her couch time productively by spreading information and awareness of our condition.

FibromyalgiaFibromyalgia

Diagnosed at 17, Michelle has been living with this condition for over 15 years. As she gets older, she is sharing the changes to herself and her body.

Fibromyalgia Companion

Firstly, Kirsten does NOT havKirsten - Fibromyalgia Companione Fibro BUT she does have over 15 years of experience in three major academic research centers studying chronic pain, with emphases on fibromyalgia, temporomandibular disorders and irritable bowel syndrome, and of course, the many comorbidities. AND she gets it. She knows chronic pain is real and it’s ugly. Kirsten’s blog is a conduit for evidence-based (well-researched) information about fibromyalgia and related chronic pain conditions, pharmacotherapy and alternative therapies, discussion, support, and really anything else we feel like addressing.

Fibromyalgia This: Diary of a Pain Warrior

Ana’s intent is to chronicle the honing of her warrior skills and development of a variety of  strategies that she has employed (and is still employing)  on this journey towards  reclaiming her health and rediscovering the joy of life.

Fibronaut at HomeSusie Marie Gomez

Published by Susan, who is doing the best she can with what she has and trying to help others in the process; that by writing this blog, she will help not only herself, but others in similar situations.

FMS eNews

Stella collates articles, awarenStella Bernardiess items, benefits issues, as well as general health considerations all in one place so FM sufferers can read widely and get an overall picture of the syndrome; and then sends it directly to you in a newsletter, once a week! It’s the only way we can deal with its symptoms, learn to cope with them and still have a life.

Fog and Shadows

Wytewing writes about her personal journey with fibro, because it is important to share the daily grind a little and let people know they are not alone.

Full Circled Me

Written by the Barefoot Baroness, who has been sharing and communicating her thoughts for the last 15+ years. BB believes that this has held more benefit for her than any support the actual medical community could provide. There is nothing better than shared feelings and experiences with another fibromyalgiac. We seem to know ourselves so well, in tune with our bodies because have had to learn to be.

The Invisible F

Written by Alisha, a 20-someAlisha - Invisible Fthing year old writer in the UK, who, besides living with fibromyalgia (& depression), wants to raise awareness to help people understand, to share and engage with all those whose lives are touched by fibromyalgia and depression in one way or another, so they know they’re not alone.

LGV

Who doesn’t like watching a Christmas tree with the twinkly little lights, going off and on? Now imagine the same inside your body, the twinkly lights being the aches and pains that you feel in your muscles. Throw in constant fatigLGVue, disturbed sleep, waking up with more pain than you went to bed with, increased sensitivity to pain, sound, muscle stiffness, mood swings and the best (or worst, depending on how you look at it) thing – a never-ending and ever-changing list of triggers. This is Lakshmi’s view of Fibromyalgia.

Does she have all the answers? NO! But she is hopeful of living my life on her own terms. She can KICK fibro in its ass!

Life and Fibromyalgia

Friends for 40 years, Heather and Kathy write about life and fibroLife and Fibromyalgiamyalgia.  Because it is such a individual illness, we can help each other, what works for one may work for another.  It can’t hurt to learn more about how others live, not just survive, but live.

Living Life as I See Fit

Lana shares her experiences because s07_LOGO_animatedhe wants to live a “normal” life and want others to see that it is okay to have a normal life and to keep dreaming, trying, believing and looking towards the future. She writes about her life with RA and FMS, her diagnosis, and her quest to find answers. She continues to do so because when it gives others hope it gives her hope too.

My Foggy Brain

Tamiko shares her experience with Fibromyalgia: her ups, her downs, her doctor visits, what she has learned and what she recommends…while always trying to remember the words to finish a sentence…YET celebrating life with fibromyalgia, major depression and ADD.

My Ordinary Simple Fibro Life! (Yeah Right!)

Bonnie wMy ordinary Liferites about her world, as she knows it, as she lives with Fibromyalgia.  As a wife and mother, a daughter and sister, an aunt, cousin, teacher and friend, her roles in life are not always easy, but she does her best while living in pain.  Welcome to her journey!

The New Normal

A mother, a partner, a friend, an activist, a lover and a loom knitter…but now, also, a patient, linking all the information she has found in books and websites, blogs and message boards, in one convenient spot.

Seeking Equilibrium

DiagnoSeeking equilibriumsed with Fibromyalgia , Rosemary Lee tries to find humor in everyday life. Sometimes it works and sometimes it doesn’t. Rosemary has a new obsession: She is on a mission. She will be finding out all she can about her mystery ailment and using herself as a lab rat – vitamins, diet, yoga and anything else to get rid of the pain!

Seeking the Gifts of Fibromyalgia

Terri is a recovering Type A personality and struggles with not being as reliable as she once was.  Once upon a time, she respected people who were reliable, consistent and great at follow-through.  So, thSeeking the Gifts of Fibromyalgiaere’s the dilemma; as a strong woman living with Fibromyalgia, Terri lives day-to-day – unable to commit to anything because you never know when the Brain Fog will roll in, the aching pain will strike, or the limbs will take an unplanned hiatus.  According to her beliefs around who deserves respect, she no longer fits into her own set of ‘rules to live by’.  This creates a bit of an internal conflict!

This is My Life ~ Surviving Fibromyalgia

Published by Melissa, a full-tiThis is my lifeme working, married mom dealing daily with the roller-coaster ride of being diagnosed with Fibromyalgia.

Walking Through Fog

Kate is not writing anothKate Gibsoner blog in hopes of creating some new resource for recipes or miracle cures that might help. The web is already full of other places and forums for that sort of resource. It is not another support group for people to air their complaints about pain, doctors, prescription medications, or the like. There are also many resources for that online. What Kate is attempting to do is share a genuine (and sometimes not so pretty) picture of this journey, which right now is greatly involved in figuring out how to best deal with fibro.

Walking Through Pain

A place tWalking through Paino read about someone’s life journey – You can make it through tomorrow, despite your hurt and pain! It does not matter how special of a person you are, it does not matter how much money you make or where your house is located. What really matter is what YOU are doing in YOUR life.

 

 

18 Comments

  1. I have had Fibromyalgia for a year & 4mons, but I woke up one day & wasn’t in pain, fatigued or ill feeling. So this lends me to ask anyone that would know, is it possibly for Fibromyalgia to go away completely? Its been almost 2mons of no sign I ever had it. Someone plz educate me & help me understand this issue.

    • Fibro will not go away completely. Maybe your diagnosis was wrong, there are many made in haste.
      Sadly fibro is progressive (confirmed by 4 fibro groups online and one local) and although in the earlier years (less than 10) you can get a life balance and have short spells of low or no pain (My last was 1/2 day in 2008). make the most of these periods.
      Had I been told it is progressive I could have prepared my home and all for when I was unable to do those tasks. Best of wishes to yo.

    • when I was first diagnoised I would go days and weeks, the medicine I took was a huge help at the time….but as I have gotten older it has become progressively worse…Learn eveything you can..take that knowledge with you to the doctors. You have already started on the right foot. You found a place to connect with others that have it and understand. I try to keep up with people on othes’ blogs. I have my own blog, it covers more than fibromyalgia, but I have a lot of informaton on it…you can find me there: http://akemisheartmindsoul.blogspot.com/ and I would be happy to become pen pals so to speak! God Bless,Darla

    • I have heard some people say it can go into periods remission

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  5. Help? I haven’t been diagnosed with fibromyalgia yet, but my doctor suspected it last time I saw her. I always have a very rapid pulse but normal bp. She sent me to a psychiatrist which makes me feel like a nut job. My Dad was diagnosed with lung cancer in Sep 2011, and I spent just under a year and a half traveling between Georgia and Wisconsin.. he had no health insurance when it began. I suffered from anxiety and panic attacks during that time. In Feb. 2013 he passed away. Dad and I were very, very close. I miss him dearly. Through the last year and a half I was on Celexa and Xanax. I was switched to Effexor and Wellbutrin. When I went off the Effexor I had terrible body aches. I have ringing in my ear, but not since I have been on Cymbalta. I have TMJ but its only really a problem at the dentist, but have been told to wear a bite guard for my grinding (terrible gag reflex-I don’t think so!) I have muscle aches and pains (voo doo doll-ish–where it feels like someone is stabbing a doll somewhere with my name on it-LOL). I have muscle spasms sometimes, when I went to the Dr I was thinking MS. Sometimes my foot gets a hot spot on it and I will lick my finger and touch the spot and it feels as though it should sizzle, but the burning goes away for a while. My head is foggy and I can no-longer think of the accurate words when speaking. I stare into space and am easily confused. I have GI problems, my vision is blurry some days, and sometimes a cloudy day is too bright for me. I have been complaining of urinary incontinence and frequency.. the physician just says kegel exercises. The fatigue is the worst. I am tired all day. I have noticed some RLS, but I attributed it to the super heavy down comforter that we handmade for my bed. I feel like there is an elephant on my chest all the time, which I attributed to the anxiety and panic attacks but now have read that there is a condition called costochondritis. I always feel short of breath. I like to gamble at the casino for fun and getting up off a stool causes me to have low back pain, the same as when I go the movies I can barely walk for a bit due to stiffness and pain. I also cry easily and have social anxiety disorder–self diagnosed but no one would argue.. lol. what do I do? I have been seeing a therapist weekly since Nov and previous to that during Dad’s diagnosis in 2011. I also will see the psychiatrist for the second time next week. Am I nuts.. or do I have fibromyalgia or both?

    • You’re not nuts! What you feel is REAL!
      But I’m not a doctor so I can’t tell you if you have Fibromyalgia. You can return to your doctor and ask to be referred to a specialist, if you need a name for how you are feeling.
      It also sounds like your doctor is treating you exactly as many of us are being treated (medication-wise)…so it sounds like she is treating you for Fibromyalgia.
      I hope you don’t have it…but you always have friends and support here.

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  10. I am fighting within myself not wanting to accept this fibromyalgia. Since 1998, I’ve fought a good fight but in the last 5 years, it has really taken a hold on my life and I HATE IT!! The more I hate it the worse it hurts! The more I try not to accept this, the more it hurts. Fibromyalgia has crippled my life. It has triggered many other serious conditions; conjestive heart failure, and yes, those “fake heart attacks” that fibro causes can kill you just like a real heart attack! It has caused me to have plantar fasciitis and my feet hurt and burn. I have lower back and neck and shoulder pain that triggers migraine headaches. I have diverticulitis and colitis. I have blurred vision. I have vertigo. I fall down a lot. I’ve had doctor after doctor and tried all the medicines and my system rejects them because I now have a messed up immune system. Because of stricter policies on pain medication and anti-depressants, I have had to go through torturous human guinea pig trials. No longer can a regular MD or an Internal Medicine doctor prescribe these things. No, you have to go through Pain Management Clinics which are now so packed you consider yourself fortunate to be able to get into one all for being put the humiliating urine and blood tests at random and once a month along with the junkies on meth and heroin so you begin to feel like you are labeled a drug abuser which I am not! My body rejects alcohol! I can’t drink the pain away. My body rejects most pain meds so I can’t even take enough to get relief! I am allergic to statins, NSAIDS. And because of this new law, I now have a doctor for my heart. A different doctor for my pain. I will be required to start going to a shrink for any sleep aids or anti-depressants. I have to go to a colon and stomach specialist. I’m not sure what the Internal Medicine Doctor serves a purpose for. I guess to refer me out to all these other doctors! The health system is so broken! I am now 57 years old but I feel 80. Some days I can walk. Other days I can’t. This is not me! I don’t know who I am! And my husband and family and friends doesn’t understand who I am now. I was bubbly, vivacious, active, and a lover of outdoors and enjoyed working. Now I feel like I’m a prisoner of my own body. When I’m having a really bad day, like today, I am not myself. No, I sound like a raving lunatic and neurotic bitch! BUT I AM NOT!! I am a loving, kind, sensitive, compassionate person. But with fibro fog, teeth clenched , can’t relax from the tension of the pain, words come from my mouth that is not me! I feel like I hurt the ones I love and have become a burden. Heck, I don’t even want to be around me! And the weather……I feel every change, every barometric pressure! And it is going to be Thanksgiving. I cannot hide this! I did for a long time and I’m just too weak. My pain tells me no one wants to be around me. This all sounds like I’m on a huge pity party and I only think about me, me, me! I AM SO TIRED OF EVERYTHING BEING ABOUT ME THAT I COULD SCREAM! How can one have a better attitude? I do realize I have it made compared to others. I know and I can even feel other people’s suffering. But that doesn’t make mine go away. The Bible says: “Comfort others and you shall be comforted.” I try to practice that. I don’t blame God or hate Him or think this is some kind of punishment. I hope it is okay to express where my only help comes from. I would not have made it this far if there wasn’t still a plan for my life that I’ve yet to do. I fail. I am human. Pain makes you cynical, bitter, and negative. On days like today, God still gives me love, mercy and grace. I pray that God hears the cries of my heart so that I am able to increase my faith which may not take away the physical suffering, but will help me to live in a higher spiritual level where I can feel that joy unspeakable and full of glory feeling! I want to fight the good fight of faith and rise above this pain to be replaced with renewed strength and fresh hope so that I can keep doing the right thing in all situations. Thank you for this website. I have read many comments and stories of others. It helps me to know I’m not crazy. It encourages me. It feels like a safe place to say these things without being labeled by what doctors say or be hurt by the people who just don’t want to deal with you.

    • I get it! I have lived with Fibro for 12 years. I also get the difference between acceptance and resignation. Surrender is a powerful thing to do (although it seems like “oh she just gave up.”) But truly it is in not fighting it that I have found my way to thrive in my life again. I still have pain and fatigue (although I admit my pain is less now) and I have my life back.
      It is a daily practice of self-care, acceptance, and engaging in life how I can do my best. I have come up with 5 steps from Ow to Wow that I use to work with my coaching clients. Things I know. . . It isn’t easy, it isn’t your fault, there will be good days and bad days, and thriving is possible! All the best to you on your journey!

  11. I have been poisoned by chemicals! I’m sick of being called crazy! I have Fibromyalgia, Chronic Fatigue Syndrome, Chemical Sensitivities! crazy does not give you tumors, crazy does not mess your colon up, crazy does not make your rectum not work, crazy does not make you defecate on yourself, crazy does not mess your autonomic nervous system up, crazy does not make you fall down, crazy does not make you run into door facings, crazy does not like you have neuropathy, crazy does not make your brain burn, crazy does not make your arteries feel like they’re going to blow up, crazy does not make you sensitive to chemicals foods grass metals trees medicines molds mycotoxins pollens animals on and on, crazy does not make you live with tormented pain, crazy does not make you have neuromuscular problems, crazy does not make your bones feel like they’re coming apart because your muscles aren’t working, crazy does not make you feel like a thousands of needles sticking in you constantly, crazy does not make your neck so weak your head is too heavy to hold up, crazy does not make it hard to breathe, crazy does not make you completely exhausted, crazy does not give you bone spurs down your spine and neck, crazy does make lymph nodes stay swollen, crazy does not mess up your immune system, The Government’s is crazy if they think they are going to keep pushing this down people’s throats. The government has put new doctors in place to detox us from the environment. Alternative, integrated, functional, herbalist, are all new doctors on the horizon to take chemicals from our body. Do not listen to the medical doctors tell you you’re crazy and want to give you a handful of pills. We have been poisoned by our food, water, air, EMF, the environment. As many things in life it comes down to money. The only chance you had too surviving these invisible illnesses from the environment is a lot of money for treatment. Environmental medicine is extremely expensive and out of pocket. What I perfect illness for the government to discredit because of your neurological changes. Fibromyalgia, Chemical Sensitivity, Chronic Fatigue Syndrome, Gulf War Syndrome, we have to band together! Doctors telling us we’re crazy. Spouses and family leaving us. Can’t hold down a job. Sick and literally do not have a 911 to call. Insurance companies are kicking us the the curb, saying we are crazy! Insurance companies will not touch any treatment for a growing percentage of the Invisible illness. Insurance companies own hospitals and control Doctors. The insurance companies are run like our government. These invisible illnesses are the new homeless in America. This is a crime against humanity in America! These people are high functioning people that has be poisoned. I’m dying a slow, painfully, disregarded as crazy, death! If you live in the deep south you do not stand a chance. It is a environmental wasteland, and the government will not even allow diagnose and treatment. What is going to bust this one open is our children. They are being born with toxins in your body. Children are being born with allergies, asthma, food allergy, cancers, brain tumors, ADHD, Tourette syndrome, learning disorders, autism, on and on. When I was a child their where no sick children. Our world is in a hell of a shape!

    Check out this link: http://www.inspire.com/grayfancy/journal/fibromyalgia-is-caused-by-the-environment/

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