Welcome our 1st Non-English Blog to FCK

As you may know, FCK is a directory of blogs that help spread knowledge and awareness of Fibromyalgia: blogs where you can get first-hand information from others who are going through the same experiences.

These bloggers educate, support, enlighten, inform, inspire and motivate people about and with Fibromyalgia.

It is with great pleasure that I welcome our first non-English speaking blog to the directory:

Young people with Fibromyalgia (Portugal) (Jovens Portadores de Fibromialgia (Portugal))

portugueseThis Portuguese blog has two administrators: Joana Vicente, a 24 year-old in pain since she was 11; and, Fátima Figueiredo, a 13 year veteran of the fight with Fibromyalgia – sharing information about Fibromyalgia and other co-morbidities.

Este blog Português tem duas administradoras: Joana Vicente de 24 anos, que sofre com dores desde os 11 anos e Fátima Figueiredo de 35 anos que luta contra a Fibromialgia à 13 anos. Partilham informações sobre Fibromialgia e outras comorbilidades.

And, some-one please tell me if I messed up on the Portuguese!

A Search for Value

The Visible ButterflyEvery day, I wake up, turn on the computer, check my Facebook page and answer any comments. (Rest) Then I look at my email and answer all of those. (Rest) Pay whichever bills have been scheduled on my Outlook calendar. (Rest) Next is my blog and twitter account. I have to do everything straight away, otherwise I forget.

After all that, it’s probably off to a yoga, hydro or tai-chi class. (Then rest)

Back home, to see if any of you guys have written to me. I will try to work on a blog post or FibroModem Girl. This can actually take a couple of hours – research, learning new stuff and diversions to other new stuff (and, of course, rest periods!)

I explored the possibility of starting a charity, which involved more research and learning; but couldn’t find enough support. This goal is not going anywhere – it may just need to sit on a back-burner for a while.

You have to remember that prior to March, I had never blogged, had a Facebook page, made a video or promoted anything – so I am actually enjoying myself. I love learning.

I also think that what I am doing has an intrinsic value. Yes, all of this is helping me to cope but I also feel like it’s helping other people. I feel that what I am doing has value.

So, trying to forget the pain/fatigue part – am I living a life of value that satisfies me?

Although I value what I am doing, and I hope you value what I am doing; other people (ie: people in ‘real’ jobs or ‘normals’) do not think what I do with my time is worth anything – mostly because I don’t earn any money.

For example, when I have a family dinner and my lawyer/executive producer cousin asks me how I stay busy all day, I have to answer that I just play around on the computer, because he doesn’t understand anything about what I’m trying to do. When I try to explain, that blank expression with a bored nod appears across his features.

Mommy gets what I’m doing but she still stresses about the money side of everything.

I know that I have to think about the money stuff – but right now, I’m unable to work so (and maybe this is the meds talking) what is the use of worrying. I’m kinda lucky because there are no kids or partners to think about BUT I really don’t know what’s going to happen when the VISA and AMEX are full. The Disability Support Pension (and subsequent back pay) was approved but the breathing space has now disappeared.

Despite all of this: I am quite happy (how weird is that?)

So, the question is: (forgetting the pain/fatigue) are you living a life of value that satisfies you? And what are you doing?

Thank You.

 

I TOLD you it was awards season…I have been nominated (again) for the Sunshine Award ( this time by Fibronaut at Home) – thank you.

But as you guys have already suffered through this set of questions, I shan’t do all THAT stuff.

The only thing I will say was that the notification post was posted under the ‘Appropriate or Not‘ poll, that caused me to lose a number of LIKErs on my FB page!

 

Awards Season

 

Looks like it’s award season again! Oh dear, what shall I wear down the red carpet?

I have received this new award from Faith and Fibromyalgia – inspired by the Sisterhood of Travelling Pants, this is an award for female bloggers to encourage the spirit of sisterhood.

Once again, there are rules:

  1. Thank the giver
  2. Post 7 things about yourself
  3. Pass on the award to 7 other deserving bloggers and inform them that they have been nominated
  4. Include the logo of the award in a post or on your blog

So here we go:

7 things about Me! (What haven’t I told you already?)

  1. When I was little, I wanted to be a maths teacher, then Prime Minister of Australia.
  2. I killed my first pet (a goldfish) with a lamb chop.
  3. I have some amazingly creative ideas but I really need help making them happen (as I don’t have an artistic bone in my body).
  4. I am incredibly passionate about raising awareness about Fibromyalgia (I have a Facebook page, this blog, a Twitter account, a Cafepress store and my new FibroModem store).
  5. I have visited most of the islands in the Caribbean (having worked on Carnival Cruise Lines) yet hardly seen any countries on my side of the world.
  6. I love shopping – just so I know where the best deals are and then I can tell anyone when they need it (I HATE people to miss out on a great deal!).
  7. I absolutely HATE that I have gained so much weight and really hate my body – I refer to myself as the Fat Pig Girl.

7 Deserving Blogs:

  1. Fibro in Your Face
  2. A Girl and her Illness
  3. Chronicles of Fibro
  4. The Silver Lining of Fibro
  5. The Gratitude Project
  6. My View from the Sofa
  7. Living!

Congratulations to all the nominees! You all are truly inspiration bloggers & I appreciate each and every one of you! And thank you Faith and Fibromyalgia.

 

I’m Walking on Sunshine

I know that reading about all of those blogger awards that are out there can be very boring – EXCEPT when I get one.

Dharshi at Faith and Fibromyalgia awarded me with the Sunshine Blog Award – given to “bloggers who positively and creatively inspire others in the blogosphere”. She wrote me a lovely message where she told me that I was an inspiration and encouragement to her. I am wonderfully humbled. And I, of course, accept because hey! look at the picture – it’s one of those happy gerberas!

Here are the rules:

1.  If you are nominated, you must blog a post linking back to the person/blog that nominated you.

Tick – done.

2. You must answer some questions, nominate ten fellow bloggers and link their blogs to the post!

If you do this, you get the award! You can use the image above to either put on your post or on your blog itself!

3. You should comment on your nominees’ blogs to let them know you’ve nominated them.

So, here are the questions:

1. Who is your favourite philosopher?

I don’t have a favourite philosopher – much as I would like to appear deep and meaningful.

2. What is your favourite number?

16 – This is my date of birth. It is also the only number that I have won anything with – in fact, I won $1,600 on the number 16 on Roulette.

3. What is your favourite animal?

Little puppies – not dogs. I like cute, little, furry puppies!

4. What are your Facebook and Twitter urls?

Facebook: https://www.facebook.com/FMawareness2012

Twitter: @FibroModem

5. What is your favourite time of the day?

About 15 seconds after entering the hydrotherapy pool, when the warmth has all-encompassed me and the weightlessness makes me feel like I can do anything.

6. What was your favourite vacation?

Italy with my Mommy (over 10 years ago) – shopping, sight-seeing, drinking cocktails and eating fabulous food.

7. What is your favourite physical activity?

Right now, hydrotherapy (for the above reasons) but it used to be having sex (am I allowed to say that?) with the toyboy that dumped me because I have fibro.

8. What is your favourite non-alcoholic drink?

A strawberry milkshake with extra strawberry! But I can only have them every now and then because the milk does horrible things to my tummy.

9. What is your favourite flower?

Sunflowers – they are the happiest flowers in the world!

10. What is your passion?

My nephew – he is the love of my life. There is nothing that I wouldn’t do for him, buy for him, teach him.

My 10 Blogger Nominees (in no particular order):

1. FibroMale – there just aren’t enough men out there willing to identify themselves with FM

2. FibroFella – as above

3. Falling Out of the Fog – a very honest and open blogger

4. Infinite Sadness…or Hope – one of the first blogs I ever read about FM

5. Find Focus

6. Notes from the Fog

7. The Mirren Lee – a woman who is reaching for her goals!

8. The Invisible F – telling it how it is

9. Walking Through Pain

10. The New Normal – I get it!

There you go! I hope you choose to explore some of these other blogs. Thanks again to Dharshi at Faith and Fibromyalgia

The First One

So, I spent 4 hours writing and editing a post to appear here. Then I found the ABOUT page (now called Background Check) and decided to move it all there (another 2 hours). This blogging thing is not as easy as it looks!

And, now I’m too tired to write anything worth reading as my first instalment. But I can’t leave it blank, can I?

So, I’ll just quickly introduce you to the people who will probably feature in my future blogs:

The edited family tree

Obviously, I’m VERY important (in the middle) but the highlighted names will probably feature in any of my upcoming blogs. Good luck getting to know me, my family and friends.

The First One

So, I spent 4 hours writing and editing a post to appear here. Then I found the ABOUT page (now called Background Check) and decided to move it all there (another 2 hours). This blogging thing is not as easy as it looks!

And, now I’m too tired to write anything worth reading as my first instalment. But I can’t leave it blank, can I?

So, I’ll just quickly introduce you to the people who will probably feature in my future blogs:

The edited family tree

Obviously, I’m VERY important (in the middle) but the highlighted names will probably feature in any of my upcoming blogs. Good luck getting to know me, my family and friends.