It’s My Life!

Woah! Really busy for me out in the real world – there is actually a life for me beyond Fibromyalgia Awareness…

As you know, last night was my fabulous shiatsu massage; but, before that, I had a very-overdue botox injection (or lots of little ones) across my forehead: Botulinum toxin, commonly referred to as Botox®, is well-known for its cosmetic use to eliminate glabellar lines, the frown wrinkles between the eyes (which is fabulous) frown_lines_beforeyet it can also relieve migraine-type headache, muscle tension headache, or chronic daily headache. Results can be dramatic. Some patients (about a third) who have suffered from daily headaches for years report being free of headaches for two to five months; so I’m hoping (at least) some of my head pain will disappear.

After that, it was an appointment with my lap-band doctor – basically unnecessary because, during this whole month, despite hardly eating because of teeth pain, I only lost 400 grams (that’s a poo!). Hopefully, after this whole ‘Lyrica-weaning’ process, I will start to lose some (much un-needed) weight!

Driving Miss DaisyToday I was lucky enough to receive my very belated birthday present – a matinee performance of Driving Miss Daisy with Angela Lansbury and James Earl Jones. I had seen the movie (a very, very long time ago – after googling it, the movie was around 1989 so I was 18) but I really didn’t remember the entire Jewish storyline, only the black racism. It was pretty damn cool and I had a (very uncomfortable) seat in the second row (that’s from the front!)

And now, tomorrow, it is Z’s 3rd birthday party (so I’ll see my father for the 1st time since The Letter) – he decided to have a gardening party with minimal decoration (BUM!) but I did what I was allowed to:

hungry caterpiller (window)hungry caterpiller

balloons

His real birthday is on Tuesday so I prepared a treasure chest of presents…

chest closed chest opened

and decorated the spare-room at my house for when he sleeps over.

view from door full view

We’re going to the Zoo!

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You’re So Vain

 

So, when you read about me getting botox in Bali, was your first thought ‘how self-involved?’ Guess again, people…

Most common locations of trigger points in migraine sufferers.

Scientists at the University of Granada have confirmed that injecting botulinum toxin (botox) into certain points named “trigger points” of the pericraneal and neck muscles reduce migraine frequency among migraine sufferers. University of Granada researchers have identified the location of these trigger points – which activation results in migraine – and their relationship with the duration and severity of this condition.

Headache is a universal experience. At present, there are more than 100 different types of headache and one of the most recurring ones is migraine, which affects approximately 10-12% of the population. And once again, women suffer more than men (being three times more common in women than in men). When migraine becomes chronic (occurring more than 15 days a month), it can disrupt patients’ daily life in a great degree.

This research study is one of the three studies that have been conducted by Juan Miguel García Leiva -a researcher at the University of Granada Institute for Neuroscience “Federico Oloriz” — and coordinated by professor Elena Pita Calandre.

Trigger Points in Migraine Sufferers

In the first study, researchers examined a sample of healthy subjects and patients with a diagnosis of migraine (any frequency), and analysed the presence of trigger points and their location, many of the explorations resulting in a migraine crisis. The most interesting findings of this study were: 95% of migraine sufferers have trigger points, while only 25% of healthy subjects have them. The most common locations of trigger points are the anterior temporal and the suboccipital region, both bilateral, of the head. Furthermore, researchers found a positive correlation among the number of trigger points in a patient, the number of monthly crises and the duration in years of the condition.

Subsequently, researchers conducted another study with 52 migraine sufferers. Over three months, patients received a weekly subcutaneous injection of 1mL of a local anesthetic into their trigger points.

After the injection of the anesthetic, 18% of patients experienced a 50% or higher reduction in the frequency of migraine crises, as compared with the basal period. Additionally, an 11-49% reduction of frequency was observed in 38% of patients. Two thirds of the patients treated reported to feel “better or much better.”

Few Side Effects

In the third study, 25 patients with chronic migraine were injected with 12.5 doses of botox into each trigger point twice, during a period of 3 months. Frequency (main variable), intensity and scales of migraine crises were recorded one month before and one month after the treatment to compare the changes experienced. In addition, side effects were also recorded during the experiment, and they were found to be mild and temporary.

After the injections, the most significant decrease in crisis frequency was observed at week 20. Similar results were obtained in those crises labelled as “moderate” and in the frequency of analgesic use by patients.

García Leiva specified that this treatment “is not a first-choice treatment for migraine sufferers,” but it can only be applied in patients with chronic migraine who have tried several treatments with poor results, and who show peripheral sensitization of muscles. Recently, the Foods and Drugs Administration (USA) has approved botulinum toxin as a therapeutical drug for the treatment of chronic migraine.

So when I have established my Bali Fibro Haven Retreat, I’ll be organising trips to my now favourite doctor for all my guests, as well as yoga and meditation sessions. I’m willing to embrace all treatments that may help us.

 

Source

The above story is reprinted from materials provided byUniversity of Granada, via AlphaGalileo.

Note: Materials may be edited for content and length. For further information, please contact the source cited above.

 

(Im)perfection in Paradise

Right now, I feel miserable! Yes, I’m still in Bali and it’s warm and the shopping is amazing BUT…You might remember a post I wrote, in June, about Temporomandibular Joint Disorder (TMJD).

In the interests of research, and having found a brochure about an anti-aging Beauty clinic (ARC) here in Bali, I decided to try the botox to stop my teeth grinding. (I have only had it done today so I can’t tell you if it’s working yet but I will let you know.) It was $150 for 16 units of Botox – for those who have never tried the stuff, that’s a pretty good price!

Now, here’s where it gets ugly…Then I decided I should top up the botox in my forehead, to stop the squinting headaches, so that was another 16 units. And then, I decided I wanted a more sensuous top lip (I have for a long time but could never afford it) so we pumped in half a millilitre of Restylane in there. Sounds great, right?

Wrong!

I’m not allowed to smoke for 24 hours – which I thought I could handle. Wrong again! Mommy is hiding in her room as she is afraid that I will bite her head off (again!) I am so crabby that I want to hit me!

I think I may have had a reaction to the Restylane as, even after icing immediately afterwards, my top lip keeps growing (like Goldie Hawn in First Wives’ Club). Mommy won’t even take a photo because she thinks one of my family will see it!  It looks like a giant blister BUT I am not stressing out (yet!); I’ll see what happens tomorrow when I wake up.

I have a lit mosquito coil (where my ashtray used to be) next to me but I am still being sucked dry by mozzies. I look like I have chicken pox (an especially attractive sight with my giant top lip!)

Very sunburnt – yes, my own stupid fault ( and goes really well with the chicken pox and giant blister growing on my face!)

Exhausted – sleeping isn’t working here (thank you FM and rooster!) and my well thought-out pacing plans have failed EVERY day.

See? Paradise isn’t perfect.