FIGHT HARD vs FIGHT SMART

We Fibro-Fighters face an uphill battle in our fight against FM so when I read this blog post, by Terry Springer of FibroTrack, I wanted to share. I found it to be very ‘Rocky’-like and motivating…

determinationMany sceptics and members of the “Fibro Ignorant” feel that individuals with fibromyalgia could recover if they would only try harder. They observe that many with fibro do not exercise, are significantly overweight, have terrible diets, live a fundamentally unhealthy lifestyle and appear to be doing very little on their own to get better. They conclude that laziness and apathy are the root cause.  Many believe that individuals with fibromyalgia have brought the condition on themselves and they suffer simply because they refuse to do whatever is required to get in shape and get healthy.

It’s easy to understand why the fibro ignorant come to this type of conclusion. Our society and culture view hard work as naturally leading to positive results. Individuals who put forth massive effort and leverage extreme tenacity are rewarded with big success. This is true in sports, business and many aspects of life in general. Determination and fighting to our utmost ability for things we desire are core values to our culture.

The observation by many that people they know with fibromyalgia do not appear to be fighting hard is both correct and in error. There is no denying that a percentage of individuals with fibromyalgia do not exercise, are obese, eat a horribly unhealthy diet and in fact do little on their own to try to get better. But why is this? There is no one answer. For some, it boils down to the effects of chronic pain and depression plus a lack of education and understanding about what is going on in their bodies and actions they can take to try to correct it.

images (1)For most however, the reality of fibromyalgia is that just living day-to-day with fibro is a monumental effort. Fibromyalgia leaves its victims with a very limited amount of normal “go juice” to distribute on a daily basis. Exceeding the limited amount of energy and focus that patients have available often results in a giant fibro flare-up. Pushing harder and trying to use tenacity frequently backfires bringing on the opposite result from what is desired!

Yet, not fighting hard to do all of the things that make up an effective self-management effort means that the odds of a patient recovering are minimal. Getting better is up to you.

This is a terrible Catch-22! Fighting too hard will make you worse but not fighting hard enough will prevent progress. How do you deal with the reality of not having enough energy and focus to accomplish daily everything you need to be doing? Is it impossible to fight hard enough without pushing too far?

The title of this blog posting is a trick. Fighting hard and fighting smart are not an either/or proposition! With fibromyalgia, the two tactics should be simultaneous and symbiotic. imagesEffectively fighting smart will increase your ability to gain results from your limited capacity to fight hard by ensuring that your hard fighting is targeted in the best direction. You must get everything possible out of your limited ability to fight hard!

Well-structured systems and defined processes form the core operating principles for all successful organisations. They are required to achieve the best results when dealing with any complex ongoing effort. Corporations, government and high-achieving individuals all rely on quality systems to help them best direct their focus and efforts. If you are fighting fibro and you want to recover – you must do the same!

fibrotrack-logoI hope you will check out the ultimate tool and system for fighting smart – FibroTrack.

But regardless, if you wish to make the most of the fighting hard you can do, you need systems and well-defined processes to guide you in fighting smart!

See what I mean? Don’t you just want to start fighting (again/more)?

Make Fibromyalgia VISIBLE!

CARE & Make Fibromyalgia Visible would love to support you in creating a memorable International Fibromyalgia Awareness Day event in your community.  That’s where your efforts really make a difference.  FM events occur all through the month of May.

This year, the National Fibromyalgia and Chronic Pain Association (NFMCPA) pulled together all of the best tips and advice–plus tools, from the pros.  Putting on an event can be easier with a ready-made kit that includes a step-by-step check-off list and a Guide to Creating Local Fibromyalgia Awareness Events for more time-tested considerations.

It’s all free and ready to be sent to you!

FM Awareness Day activities (through NFMCPA) revolve around four topics have a special emphasis raising public FM awareness, not just awareness to those who have FM, their families and friends. The NFMCPA created materials for people with FM, Support Group Leaders, and other advocates to create awareness and education of FM and chronic pain illnesses.

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National Fibromyalgia & Chronic Pain Association Community Picnic, Walk to CURE FM, & Mall/Farmer’s Market Table Top* Event Kits contain:

• 11×17 Table top cardstock poster with tripod
• 11×17 Posters for community event boards
• FM Information Brochures
• Guide to Creating Local FM Awareness Events
• Event check-off list start to finish
• Buy Door Prize Tickets sign
• Door prize drawing tickets ($1/ each or 6 for $5)
• Donation sign
• Receipt book for donations
• Support Fibromyalgia Research Petition

An NFMCPA External Events Agreement is available here.  To order your free Awareness Day Event kit, please send an email to info@fmcpaware.org.

An NFMCPA External Events Fundraising form can be found here.

(Fundraising is not required to receive the free Awareness Day Event Kit.  Donations and fundraising are always appreciated – but we don’t want that aspect to hold you back from creating your great event in your community.)

*Table top kits do not contain tickets or ticket signs.

Fibromyalgia Awareness Day Community Picnic Event 

A specific Community Picnic check off list created by the NFMCPA offers instructions to volunteers about how to host a FM Awareness Day Community Picnic.  The information includes suggestions on how to garner local sponsorships such as donations of food items; paper products (plates, napkins, etc.); prizes for old-fashioned picnic appropriate games, i.e., three-legged races, balloon toss, etc.; media awareness development such as local newspaper, radio and television coverage; FM informational brochures and reusable table top posters promoting the “CARE & Make Fibromyalgia Visible” theme.  A Petition for Fibromyalgia Research to find a cure and treatments is part of a larger ongoing effort to send a united message to national legislators and policymakers.

Fibromyalgia Awareness Day – Shopping Malls, Health Fairs, Farmers Market, Table-Top Exhibits

Putting a special emphasis on reaching out beyond the FM community to educate the general public about FM, the NFMCPA is suggesting that people consider hosting an FM Awareness table at a public location frequented by crowds of people.  Most cities have shopping malls that allow community-sponsored nonprofit awareness events. The NFMCPA offers the Fibromyalgia Awareness – Shopping Malls, Health Fairs, Farmers Market and Other Public Venue Event Kit.  If your local area does not have a shopping mall or the management doesn’t allow information tables, then think about scouting out local health fairs, farmers markets, libraries, grocery stores, exercise gyms, etc, to inquire about setting up a Fibromyalgia Awareness Information table.  The Event Kit gives you everything you need to create this type of outreach, including a special check off list for this activity.  Visit here for more information.

Fibromyalgia Awareness Day Walk to CURE FM

The NFMCPA has once again posted information regarding how to hold a local Walk to CURE FM Walk.  NFMCPA’s excellent Guide to Creating Local Fibromyalgia Awareness Events is now available at www.fmcpaware.org website for easy access. Walks are just one of the components listed in this guide which details several options for people who want to host a May 12 Fibromyalgia Day Awareness Event.  If you’d like to create a public FM awareness Walk to CURE FM, new materials offer ideas to involve others in promoting the walk to the general public.  The Walk to CURE FM Check-Off List includes ideas on reaching people outside of the FM Community to participate in this type of advocacy event.  The Guide to Creating Local Fibromyalgia Awareness Events is currently readable on the NFMCPA website, but hard copies of the publication are available for use by NFMCPA constituents and advocates.  A free Walk to CURE FM Event Kit is available on the website and includes a copy of the Guide.

State Legislature Visits – Proclamation and Resolution Program (USA only)

The NFMCPA Legislative Proclamation and Resolution Program is available on the website at http://www.fmcpaware.org/proclamation-and-resolution-program-a (under Community, then Awareness Day).  The information can easily be downloaded and made usable by NFMCPA constituents.  As in past years, people with fibromyalgia and their loved ones will be encouraged to approach legislators to recognize May 12 Fibromyalgia Awareness Day.  Advocates are encouraged to collect support signatures from the public that can be sent to elected officials to illustrate backing from voters.  The NFMCPA plans to build on this public awareness format through 2013 and beyond in an effort to spread CARE to Make Fibromyalgia Visible Campaign.  Click here for more information.

A-Day-Aware-for-homepage-2013

The observance of International Fibromyalgia Awareness Day, officially May 12, can take many forms.  The 2013 theme – “CARE & Make Fibromyalgia Visible” – encourages people to contribute, advocate, participate in research, and educate others about fibromyalgia.  This day brings people with FM and their communities together around the world.

C.A.R.E & Make Fibromyalgia Awareness

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The National Fibromyalgia & Chronic Pain Association encourages organizations worldwide to make fibromyalgia visible by increasing awareness and understanding during May and on May 12 Fibromyalgia Awareness Day.

To download free logo to use in signatures, on webpages, or wherever you like, Click here.

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The Walk to CURE FM national walks are spreading.  Join or start a walk in your community!  Click HERE. Questions about the Walk to CURE FM?  Experience with creating a walk?  Please share your thoughts on the community tech support forum.  Thanks!

PLEDGE TO CARE

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Family members, friends, and healthcare providers can show their support for those with FM by taking the NFMCPA’s Pledge to Care.  Those who take the pledge with have their first initial, last name, state and country listed on our “We Care” page, along with name(s) of individual(s) they are honoring.  Click Here!

Give through LIGHTS OF HEALTH

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Wherever you are let your light shine at the National Fibromyalgia Awareness Day Event.  Whether you will be there in spirit or in person, you can sponsor a candle in honor of yourself or a loved one living with FM.  Click Here!

AWARENESS EVENTS AROUND THE WORLD

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Fibromyalgia events are held in many places.

 To join an event near you, please locate the “Awareness Day Events” button below the map.
(US – to post your event, please Click HERE!)
(International – to post your event, please Click HERE!)

Six Word Fridays: LIFT

six word fridaysThe Six Word Friday prompt this week is LIFT – {Lift the ban. Lift my spirits? Heavy lifting. Take the lift to the top floor? Lift me up. Give me a lift!}

The challenge with this kind of post? To keep each line I write to only SIX {6} WORDS!! (we don’t count the number of lines, syllables or letters…just the number of words!).

Examples have included:

  • Six word photo caption
  • A verse, each line composed of six words
  • A story, told six words at a time
  • A six word quote {or six words of a quote}
  • A wish {a musing, a lesson…anything at all!}

Education lifts individuals

out of poverty.

education