Blast Off -2 days

Two days until the beginning of the hospital visit (again!)

When we (the Team: my pain specialist, Mommy and me) decided we were going to try this ketamine thing again, my doctor suggested we put in a central line instead of trying to find veins for a cannula.

You might remember I had a lot of trouble with cannulae last time: 6 wonderful needles into my veins instead of what should have been only 2 or 3, and then, finally, a subcutaneous cannula in my tummy – to which I had a horrible reaction. So you can imagine how happy I was to hear that this wasn’t going to happen again.

In fact, I was so happy that I didn’t bother to ask any questions…off to Google I go, and now I’m a bit worried…

A temporary central line is a short-term, long, fine catheter placed in a vein, with an opening at each end used to deliver fluids and drugs. The central line is inserted through the skin into a large vein that feeds into a larger vein sitting above the heart, so that the tip of the catheter sits close to the heart. There are several veins that are suitable for access, and the line may be inserted above or below the collarbone, on the side of your neck, in your groin or at the front of the elbow. The actual skin entry site depends on which vein is used. AAAARGGHHHHH! I am really hoping they choose above the elbow – I seem to have gotten that impression from the doctor.

picc for procedureSo, at 9am on Wednesday morning, I am expected to arrive at the Radiology department of one hospital, where an interventional radiologist will use x-ray and ultrasound guidance along with minimally invasive techniques to insert a special hollow needle. Supposedly, I will be under conscious sedation (a twilight sleep) and be given pain medication in order to minimize any discomfort. Bit, it really is beginning to sound VERY scary!

A tourniquet will be applied to my arm (hopefully – I really don’t like the idea of a needle going anywhere near my neck!) and the area is cleaned and draped; a local anaesthetic is injected into the skin near the vein. The catheter will be inserted through the needle, threaded through the vein and positioned so the tip of the catheter is in the large vein that carries blood into the heart.

Next, about 3 hours later (or so I’ve been told, although my Google searches says it only takes an hour), I will go to another hospital. No, blood will NOT be gushing from the protruding tube! When the line is not in use, a plastic cap and a clamp to prevent leaking of blood close any part of the line that sits outside the body. It should be secured with a “Stat lock” device (ie without stitches), and can be left in position for several weeks to months as long as it does not become infected. Thank God I only have to have it in for a week!

And, then, the ketamine experience will begin again…


D-Ribose Availability

I had some requests about where to buy D-Ribose, so GOOGLE, here I come!

Firstly, the report I read stated (at the end) that Douglas Laboratories exclusively distributes Bioenergy’s Corvalen for professional use; Nutri-Health Supplements, LLC, sells Corvalen through direct-to-consumer channels; and Sedona Labs distributes Corvalen to the retail health food store market.

Then, I did my own search:

Better Health International sells Corvalen D-Ribose 9.9 oz (280 g) (containing Pure D-Ribose) for US $30.99 and Corvalen M 12 oz (340 g) (Containing Malate and Magnesium in addition to D-Ribose) for US $33.75.

Biovea Australia sells D-RIBOSE 1000mg 60 Fruit Chewable Tablets by Source Naturals® for AU $35.95. has 25 different versions ranging from US $25.99 to US $49.08 – this also includes powder form

Amazon is selling NOW D-RIBOSE 100% PURE POWDER for US $20.00

The recommended dosage for us FM sufferers is 5 grams three times a day (this amount was suggested by Dr Teitelbaum).

If you’d like to see iHerb’s selection of D-Ribose products, click here. Use Coupon Code LHJ194 to get $10 off any first time order over $40 or $5 off any first time order under $40.

Please consult your doctor as to which brand/form is appropriate for your use, and to discuss side effects.

A Little Humility, Please.

Ok – so I got a bit snarky (read any of the following: temperamental, sulky, sullen, irritable, short-tempered, grumpy, petulant, brooding, grouchy) yesterday with my post. But hey! if I can’t do it here, in this (normally) warm and caring environment, where can I do it?

But, I really must tell you that I appreciate every one of your comments, posts and/or messages on my Facebook page or here on my blog. It amazes me that you can be bothered to read what I write (especially when it is as inane as yesterday’s post).

Sometimes your comments make me say ‘What-the?’ and then I know that your awful typing or terrible spelling means that you are in a flare – so they mean even more because you fought through it to tell me something.

Often your comments make me smile or giggle. They can sometimes be thought-provoking and send me on a dash to Google for some more research.

Your comments can make me feel sad and disappointed for you – and make me want to make your life easier or your family more supportive or the world a better place.

Often your comments will absolutely make my day – knowing that I have cheered you up or introduced you to an alternative therapy that may help.

Most of all, your comments humble me (sitting on my couch, mostly in my pyjamas).

Thank you.

Zip! Zilch! Nada!

I have absolutely nothing to write about.

I have spent the last three very cold, rainy days locked up inside with swollen glands. It started in my throat and now every gland (and I looked them all up on WebMD) is swollen and aching. I had to give away a shiatsu appointment and a reflexology appointment. I wasn’t able to go to yoga, tai-chi or hydrotherapy; and, instead, I have been sitting at home, drinking hot chocolate and eating fairy bread (it makes me feel better!) All the doctors’ appointments are filled up because everyone is sick – Welcome to winter in Melbourne!

Anyway, I have an appointment with a doctor (not MY doctor) today, who will (hopefully) give me something to make it go away, and not just tell me to rest and take panadol (I do that already!)

So, I have nothing of interest to tell you and I can’t find any new and exciting research to share – Bummer!