♩♫ Lyric(a) Writing is an Interesting Process ♫♩

So Week 3 started today…my body aches just a little more each day, the fog is not lifting (which I really thought it would), and my face hurts beyond words.

doses

It doesn’t help that I had to go to the dentist for a Crown preparation so last night was spent with some frozen vegetables attached to my cheek.

And I’ve hit exhaustion – I think I have over-loaded myself with the Thunderclap campaigning (nagging), blogging every day, reminding contributors for the next issue of LIVING WELL with FIBROMYALGIA, tweeting, my shop and my FB page – it’ll all quiet down after May 12th but right now, I keep getting anxious that I’ve forgotten something to do. spireI’m also trying to get ‘them’ to light a spire (that we have in Melbourne) in PURPLE for May 12th (looking forward to a night-time picnic with Thais (did I tell you she’s back?) under the spire – anyone else coming? You can help by emailing the appropriate people)

I’m also trying for Sydney Harbour Bridge and the Opera House but I think I’ve left that one too late! (If you want to help with this one: tweet to @VividLive  Niagara Falls will B PURPLE from 10:15-10:30PM EST on May 12 for #Fibromyalgia Awareness: can we light up the Bridge & Opera House?

sydney opera house Sydney_Harbour_Bridge01

So I haven’t had a chance to FEEL anything. I just want to rest BUT I don’t feel I can as this is the lead-up to Awareness Day (I can rest afterwards, right?).

I try not to nap during the day (no matter how bad it gets) but today, I fell asleep for 4 hours.

My body just wants to stop – but, as you can see, I have no idea if it’s medication related or just life!

In Exactly 4 Hours…

In exactly 4 hours, I should get to see how/if all the hard work of the last couple of months, promoting (read ‘nagging’) the Make Fibromyalgia VISIBLE Thunderclap, has had any type of effect on Facebook and Twitter.

Hopefully, all of those supporters (as I write, at 757) and at least some of their friends and family (currently at 254,384) will upload this picture to their Facebook cover-photos for the entire month of May.

Right click this picture to save to your computer; then upload to your cover photo.

Click on this picture: Right click on the full-size header to save to your computer; then upload to your cover photo.

Visible army squareHopefully, all 953 members of the VISIBLE Army will upload their VISIBLE Army photo to their profile pictures for the entire month of May.

Hopefully, in exactly 4 hours, more people will be aware the Fibromyalgia exists.

However, in exactly 4 hours, I will be sitting in my dentist’s chair, getting prepped for a crown (Not happy, Jan!)

lrg_Ornamental_Divider__Englische_Linie

niagaraBut one thing I definitely won’t be missing is when Niagara Falls goes PURPLE for Fibromyalgia Awareness. Niagara Falls will be PURPLE from 10:15 to 10:30pm EST on May 12th. No, I won’t be going to Canada! I’ll be watching it live from my lounge room in Melbourne, Australia on http://www.niagarafallslive.com/

If you want to see it, too, and you’re somewhere else in the world, check out the countdown to Live Webcast: Niagara Falls & Fibromyalgia Awareness.

Can you tell? I’m a bit excited by all the happenings for Fibromyalgia Awareness.

It’s Like Thunder(Clap)!

If you follow my Twitter or Facebook page, you will know that I have been nagging everybody to support and promote our ‘Make Fibromyalgia VISIBLE’ Thunderclap; and with 14 days to go, it’s time I started nagging you!

I REALLY want to hit 200,000! Please help.

I REALLY want to hit 200,000! Please help.

What is Thunderclap?

Thunderclap is a tool that lets a message be heard by saying it together. When we reach our goal number (which we have blitzed!), Thunderclap will share the same message on EVERY supporters’ Twitter and/or Facebook page at the same time! You and others will share the same message together, spreading an idea through Facebook and Twitter that cannot be ignored!

For example:

Clap 1

Click on this picture to support and promote the Thunderclap.

What is THIS Thunderclap?

Firstly, this is NOT a Facebook page or website specific project – so I am hoping that this will be supported by ALL of us!

clap 2

Click on this picture to support and promote the Thunderclap.

I don’t know how to turn Facebook purple (like the breast cancer awareness people do with pink), so this Thunderclap is me asking EVERYONE to upload the following cover photo to their own profiles for the entire month of May.

header

Click on this picture to get full-size header to save and upload to your cover photo.

The message will be published on every supporters’ Facebook page and/or Twitter feed (because we have reached the goal number) on May 01 at 12:00 AM EDT. Here’s the world-wide times (yes, I know it’s a small picture — just click on it to enlarge):

time

What Can YOU do to Help?

1. To support the THUNDERCLAP personally, click the link then you can:

  • add more social reach with Twitter or Facebook; and/or
  • promote the THUNDERCLAP by sharing or tweeting.

2. You can promote it on your Facebook page

clap 3

3. You can write a blog post to let all your followers know about the project.

clap 4

4. On May 1st, upload the cover photo to your Facebook page (AND upload your VISIBLE Army picture to your profile photo)

Our goal: to no longer be ignored! Just think…we could be trending in May!

I really hope you jump on board…and I hope this campaign can bring some major awareness!

Many people (and doctors) do not know what it is (or doubt its existence) – it is time to make people aware!

Help take the mystery out of Fibromyalgia, and help spread something more powerful: HOPE!

 

Please share, tweet, re-blog, etc. Let’s get as much coverage as possible!

A Mish-Mash Update Post

You might remember back in January, I wrote Bigger is NOT Better. As part of a recent campaign in Australia, I pledged to lose 30 kilograms (about 66 pounds).

I am reminding Sherri Caudill Lewis, Lara from Live your dream life and sparkle, Kimberley Hatfield- Patty, Valerie Dunlop, Vicki, FibroLogic (all people who commented on the original posting), and all those who didn’t comment but decided they wanted to lose weight, that we are still in this together. How are you all going?

Anybody else trying to lose some weight to feel better?

I have lost 9 kilograms so far and I’m working really hard to try to exercise more and eat less (chocolate, cheese & ice-cream). The new season of BLThe Biggest Loser just started and I decided that it was the perfect time to do sit-ups and crunches each day. I figured that if I was going to lose all this weight, I didn’t want a ‘flappy’ tummy. I knew it was going to hurt; but I hurt everyday so, I thought, let’s make it worth it.

My Pain Specialist vetoed that idea! The more stomach muscle spasms I was having, the less I could do any aerobic exercise (ie: walking).

So, I have just returned from my warm water exercise class (a permitted activity), where I worked as hard as possible (and, I can tell already, was too much). Right now, my body feels all stretched out and fabulous BUT tomorrow I know that my muscles will be screaming!

brilliance-1stIn my shower, afterwards, I test drove a hair colour called Ultra Violet. I thought I may be able to get a great purple (I’m going Purple for the entire month of May!) in one process. I stopped at my hairdresser’s first to check that, if it didn’t give the desired result, we could bleach it out and try another purple. It’s still damp but it’s looking more red than purple – BUMMER!

***AM.02-11.LubesTip of the Day***The exciting news is that I found a new use for lube. I couldn’t find any Vaseline to put around the edges of my hair (to stop my skin going purple) so I tried lube (especially seeing as I’m not having any sex) and it works really well – ***Tip of the Day***

So, that’s all my latest news…have you got any plans for International Fibromyalgia Awareness Day?

Paint YOUR Town Purple