Hello my little family of Fibro friends,
Today, I received a notification: I have been with WordPress for 1 whole year; which means today it’s our birthday. And I say ours because if it wasn’t for our little band, I probably would not have continued to blog every day or maintained my vigilance with our awareness projects.
So, I figure that now is the perfect time to have a run-down of our current projects, set some goals for the next year while promoting those projects to those of you who have not gotten involved…
The VISIBLE Army
Become part of the Fibromyalgia VISIBLE Army! Join another 898 soldiers (with and without FM) who are fighting to bring awareness to our invisible condition.
If you haven’t already joined, visit our page of templates, insert a fabulous photo of you, then post your new profile picture to my Facebook page so I can add you to the gallery on this website, Pinterest and the FB gallery.
Originally, the idea for the photos was to have you all upload them to your profile pictures. I understand some of you hesitated in uploading your VISIBLE Army photo, as FM is NOT your whole world (for some of you); but the idea for all the photos was to encourage other people to ask questions.
So, on March 12th (just passed!) and April 12th – I am asking you all to upload your VISIBLE Army photo for the whole day. Then, for the entire month of May (May 12th is International Fibromyalgia Awareness Day), you keep your VISIBLE Army photo as your profile picture.
Thunderclap is a tool that lets a message be heard by saying it together.
When we reach our goal number (and we already have!), Thunderclap will share the same message on EVERY supporters’ Twitter and/or Facebook page at the same time!
Our message is set to ‘go off’ on May 1st. The message that will appear is: Make Fibromyalgia VISIBLE (for the whole of May) with this Facebook cover photo http://thndr.it/VaVZqZ
The cover photo that we are asking everyone to upload, to turn Facebook purple is:
Right now, we have 269 supporters and we will reach 87,210 people on May 1st.
This is one time when you really can make a difference. Visit our Thunderclap and choose to promote and/or support it on Facebook and/or Twitter. I think it is quite realistic to have a current goal of a social reach of over 200,000! Help make it happen!
Provocative, isn’t it?
FCK stands for Fibromyalgia, Community, Knowledge. It is a directory of bloggers who educate, support, inform, inspire & motivate people about & with Fibromyalgia.
I chose the acronym deliberately, not to offend but, to make people take notice.
I think it’s about time we start ‘branding’ our awareness campaign. We NEED to stand out! We NEED people to take notice. We NEED people to ask what it is.
So, I’m hoping that as the directory grows and more people share the link, more people will see the banner and actually ask about it.
We all know how difficult it is to find an understanding and knowledgeable doctor. You may not have noticed but we currently have a page called Fibro-Knowledgeable Doctors. These are doctors who have all been recommended by patients.
For pages like this to work, we need more people to share their recommendations. If you have one (or more), please email me at firstname.lastname@example.org.
LIVING WELL with FIBROMYALGIA
We have just published our 4th issue of the E-Mag LIVING WELL with FIBROMYALGIA. It is available (for free) by subscription.
Our next issue, out June 1st, is themed TREATMENTS. If you would like to contribute, check out what ‘m looking for HERE.
So, happy birthday to us; and keep spreading the awareness!