The First One

So, I spent 4 hours writing and editing a post to appear here. Then I found the ABOUT page (now called Background Check) and decided to move it all there (another 2 hours). This blogging thing is not as easy as it looks!

And, now I’m too tired to write anything worth reading as my first instalment. But I can’t leave it blank, can I?

So, I’ll just quickly introduce you to the people who will probably feature in my future blogs:

The edited family tree

Obviously, I’m VERY important (in the middle) but the highlighted names will probably feature in any of my upcoming blogs. Good luck getting to know me, my family and friends.

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  1. Hi Simone, this is the first time I have ever commented on a blog so please bear with me. Wow, u r so brave for setting up a blog and putting yourself out there, I look forward to reading your blog. My name is Leanne, I am 51 years old, I have a very fit and active partner and a 10 year old step son. Up until 3.5 years ago I too was a fit and active person, very healthy. I had never heard of Fibromyalgia and could not wrap my head around it and still have real issues accepting the person I am now as opposed to the person I was. I feel like my partner has been ripped off as I am not the person he met and fell in love with. Right now, I am sitting home while my partner takes our boy to Taekwondo classes as I am too stiff and sore from going to my boy’s sports day for the first time since diagnosis. I had to stand up all day and thought I was going to pass out with the pain, but I put the grin in place and supported my lovely step son who was so happy I could make it this year. I am hoping I am well enough to go to his classes tomorrow but know I have to take him for haircut etc tomorrow and he has asked me to bake his favorite biscuits, so I already dread tomorrow and hope it is a mild purple haze day. I can no longer go out in the evening with friends to catch up over dinner as I am in much pain and from late afternoon onwards I really stiffen up. My friends try to understand, but they don’t, not really. I broached the subject of not being unable to go out in the evening and they suggested I have a nap in the afternoon, if only it was that easy hey!. I must go now and try to rustle up some dinner before the boys come home, hope u r still awake after my rant! Take care, Leanne <3

  2. Thank you for taking the time to read my blog, Leanne. I hope I can be entertaining, supportive, informative and everything else some-one might wish for in a blog.

    I guess I’m (kinda) lucky as I only have to look after me but then I don’t have the love (from your extremely-lucky-to-have-you partner) part, either.

    Grass is always greener?

    Grab the good days,

  3. Hi Simone: Just found your blog. I live in sunny So. Florida too. I was diagnosed in 1992..Yep, I was one sick girl. Went down to 85 lbs cause I didn’t want to quit working. Finally, it was quit or 6ft under! So I took the plunge & quit. My fibro has increasingly become worse, never had the horrible fatigue I have now. But then again, I was on Provigel but had to give it up since I am on permanent disability & they don’t agree w/paying $12 a pill!! Well, I can say I try to accept this illness (since everyone tells me I have to) but to date, I still can’t! Yes, I get angry, sad, depressed, and I’m just PLAIN SICK OF PILLS!! Nothing seems to work…yeah, pace yourself, but it seems if I do I am always left out of family functions. Just put a big smile on your face & keep going. I, too, am on the couch daily and now my husband is on disability for COPD. WOW! Talk about stress!! Two of us looking at each other daily is rough…thank God I have my dogs. They are the only ones that listen. Everyone else just doesn’t GET IT!! Anyway, I’m sorry you have been afflicted w/this rotten disease. Only Fibro people understand each other. Take Care & Thanks for listening 🙂

    • Hi Sharon!
      Have a look at my post ‘A New (better?) Philosophy’ – I’m sick of the pace yourself philosophy. Let’s just grab our moments of pure joy when we can get them!
      And you can let off steam here anytime you want to…I will always listen!

  4. Pingback: The Chosen People « fibromodem

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